Lior’s Story
When Lior’s two young children were unexpectedly diagnosed with Wolfram syndrome, everything in her life shifted. Now, she’s channeling fear into hope — and calling for urgent support for research that could lead to a cure.
Cathy Gildenhorn’s Story
Cathy, 69, shares how a late diagnosis of Wolfram syndrome reshaped her independence, fueled her advocacy and inspired her to build community through storytelling.
Michele L’s Story
Michele L., 58, reflects on the process of getting an accurate diagnosis and the importance of community while living with Wolfram syndrome.
Richie Kahn’s Story
Diagnosed at 34 after rapid vision loss, Richie later learned he had the Ashkenazi subtype of Wolfram Syndrome — now he’s helping reshape clinical research to better reflect patient needs.
Rachel H’s Story
Rachel shares how her diagnosis brought clarity to years of unexplained symptoms, including color blindness and atypical diabetes.
